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The goal of Q1K is to accelerate discoveries that can help elaborate services and programs that better address the needs and aspirations of individuals with neurodevelopmental conditions and their families. 

Innovation and inclusion 

  • Innovative collaboration: Q1K brings together 12 researchers from diverse fields to deepen our understanding of genetic, brain, and behavioural differences associated with neurodevelopmental conditions.

  • Participation for all: Q1K invites people of all ages to participate, including those often underrepresented in research. Our protocol is designed to adapt to different participant needs and profiles.

  • Open Science: Q1K is a widely accessible resource that supports and advances research both in Quebec and globally.

Governance

Q1K’s governance ensures thorough management of our protocols—from data collection to sharing results with clinicians—aligned with the Ministry of Health and Social Services guidelines for research.

Towards a learning health system

  • Clinician engagement: Clinicians play an essential role in supporting participation in Q1K research.

  • Streamlined data collection: We simplify data collection to reduce the workload for families, ensuring data benefits both research and clinical care.

  • Returning results: Research findings are shared with clinicians to improve care practices.

Q1K resources

  1. Registry: A provincial resource gathering information on individuals interested in participating in research.
  2. Biobank: A secure facility that stores biological samples, such as DNA and stem cells, to support genetic research.
  3. Database: A comprehensive system compiling data on genetics, health, and behaviour, helping us learn more about neurodevelopmental conditions.